Makenna and Camille: Graduation Party

Tuesday, June 1, 2010

Graduation Party

Jay, Sarah and Nicholas - opening graduation cards.

Tired after a long day at Aunt Carrie's house.

Hokey Pokey - put your head in!

Do the hokey pokey and turn yourself around!

Dress up!

Love the look!

My nephew, Nicholas, graduated from high school on Saturday. We didn't go to the ceremony because we didn't think Cami and Makenna could sit that long (big graduating class.) Plus it was at 10:00 and he lives 21/2 hours away. We had a great day goofing off at the Waite household though :0) We took a long walk. Cami danced to the Hokey Pokey with Nana. She also played dress up with Sarah's hand me downs. Makenna went on a walk with us and played in Sarah's room for a long time, however, she started feeling ill towards the end of the day and was run down with a fever.

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CHARGE Syndrome

"CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display."

Information taken from CHARGE Syndrome Foundation Website. For more information or to make a donation please visit: CHARGE Syndrome Foundation - Home