Makenna and Camille: Ezra's Birthday

Tuesday, June 1, 2010

Ezra's Birthday

Birthday Boy!

Ezra with gifts.

Everyone is interested in the gifts.

Fun times.

First haircut

Couldn't get any cuter.

The snake - yuck.

Makenna's new pet? I don't think so!

Sunday we headed to Newcomerstown for Ezra's 2nd birthday party. We had a good day. It was really hot. Since Makenna wasn't feeling well the day before she stayed inside and Cami only lasted outside for a very short time. The kids found a snake in the playhouse. Makenna loved petting it and didn't even hesitate to touch it! Cami got her first hair cut from Aunt Peggy. The rope you see in some of the pictures is not a noose - they hang a swing in the living room during the winter so the kids can have indoor fun :0)

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CHARGE Syndrome

"CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display."

Information taken from CHARGE Syndrome Foundation Website. For more information or to make a donation please visit: CHARGE Syndrome Foundation - Home