Makenna and Camille: Susil Family Christmas

Saturday, December 26, 2009

Susil Family Christmas

Cami(13mos), Kenna(8), Ezra (19 mos), Gracie (2), Ayla(3), Addison(22mos)

Everybody wants a kiss!

Cami had a meltdown and Ezra escaped!

Grandma and Grandpa Susil

Beautiful Camille

Makenna, Addison and Ayla opening presents.

Christmas afternoon we enjoyed a nice lunch with the Susil clan! After lunch it was on to more presents. Of course it was so much fun - with six kids, five of which are 3 years old and under. As you can see from the group shots we all had a lot of excitement!

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CHARGE Syndrome

"CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display."

Information taken from CHARGE Syndrome Foundation Website. For more information or to make a donation please visit: CHARGE Syndrome Foundation - Home