Makenna and Camille: "Snow" Much Fun!

Monday, December 28, 2009

"Snow" Much Fun!

Mommy pulling Makenna and Cami through the yard. Cami loved it!

Kenna going down hill by herself! WHEEE

Daddy and Cami on her first trip down hill sledding! Woweeeee!

The girls all bundled up for the snow!

A little snow fell last night so we bundled up and took the girls out this morning in the COLD wind! It was Camille's first snow experience. She had a lot of fun sledding and laughed when she went down the hill with daddy. Makenna went down the hill by herself today. She was a little nervous on the way down but decided it was fun when she was all done.

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CHARGE Syndrome

"CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display."

Information taken from CHARGE Syndrome Foundation Website. For more information or to make a donation please visit: CHARGE Syndrome Foundation - Home