Makenna and Camille: Butterflies!

Sunday, July 5, 2009

Butterflies!

Cami's room is decorated with butterflies. Every time she gets up from a nap or in the morning she looks at those butterflies. She stares and stares with a serious expression until we tell her they are her butterflies and sign butterfly to her - then she gets a huge grin on her face.

2 comments:

cassieJuly 5, 2009 at 10:02 PM
CAMI IS SO CURIOUS! IT IS OBVIOUS HOW SMART SHE IS. THE PICTURES ARE ADORABLE.
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Westward BoundJuly 8, 2009 at 12:12 AM
My baby is growing so fast. She looks so happy with her daddy. Can she say mama? Don't let her forget how to say Nana. I know Makenna won't forget.
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CHARGE Syndrome

"CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display."

Information taken from CHARGE Syndrome Foundation Website. For more information or to make a donation please visit: CHARGE Syndrome Foundation - Home