Makenna and Camille: A Nice Day

Thursday, May 21, 2009

A Nice Day

Tuesday (5-19-09) was such a nice day. Makenna and Camille were excited to try out their new play yard and swings.

1 comment:

Leslie, Arlin and Katie KauffmanMay 26, 2009 at 11:09 AM
Love your new blog, Katie! Makenna looks great! Sounds like she is doing well, too. Cami is a sweetie! We'd love to add a link to your blog on Katie's blog.
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CHARGE Syndrome

"CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display."

Information taken from CHARGE Syndrome Foundation Website. For more information or to make a donation please visit: CHARGE Syndrome Foundation - Home