Makenna and Camille: Look who is 6 months!

Wednesday, May 27, 2009

Look who is 6 months!

Can you believe it? Our little Camille Rose is 6 months old already. She can do a lot of things by now. She says dada and nana, she blows raspberries, she rolls everywhere and scoots backwards when on her belly. She is GREAT at pulling hair (Makenna loves that skill!) She grabs anything within reach, even her spoon. Cami loves to look at books and even listens to an entire book already. Playing peek a boo and So big are lots of fun too.

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CHARGE Syndrome

"CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display."

Information taken from CHARGE Syndrome Foundation Website. For more information or to make a donation please visit: CHARGE Syndrome Foundation - Home