Makenna and Camille: The Outer Banks

Friday, July 16, 2010

The Outer Banks

Daddy and Makenna way out in the sound.

Digging in the sand

Baba and Makenna on one of their MANY walks.

Girls playing in the little shade we had on the beach!

Cami wants out of the huge hole Baba found in the sand.

Finding pretty shells - Cami's favorite activity

Mama and the girls

Daddy and Cami checking out the ocean for the first time.

Baba and Makenna

Cami is not too sure about the water rushing in - Makenna loves it!

Heading out to the beach our first evening in OBX!

Here are a few pictures from our short trip to the Outer Banks. We enjoyed beautiful weather and a great campground while we were there. We also ate some delicious seafood - yummy!

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CHARGE Syndrome

"CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display."

Information taken from CHARGE Syndrome Foundation Website. For more information or to make a donation please visit: CHARGE Syndrome Foundation - Home