Makenna and Camille: Dance!

Sunday, May 16, 2010

Dance!

Dancing :0)

Final pose for their act.

Ready to go!

Opening - In the center 2nd row back!

Ready for the opening.

Well Saturday was the big Dance Recital day. What a long day it was. Makenna had baseball at 10:00 and off to the recital by 12:00. She did a great job and was a trooper through the whole thing. We didn't quite make it to the closing number though because Cami was at her limit. We were so proud of Makenna. Thanks to Nana, Mamaw and Papaw for coming to support Makenna!

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CHARGE Syndrome

"CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display."

Information taken from CHARGE Syndrome Foundation Website. For more information or to make a donation please visit: CHARGE Syndrome Foundation - Home