Makenna and Camille: So Big

Thursday, January 28, 2010

So Big - 14 months!

I want to play in the snow again- if only I could figure out this snow suit!

Daddy and Cami- Go Bucks

Taking herself upstairs for a nap!

Cracking up with daddy- he is so funny!

Sisterly love or maybe that is a push.

Cami is 14 months old! Where does the time go? She is on the move. She has mastered the steps - up and down. She gets into all cupboards and drawers. She can follow directions amazingly! I can't get over everything she understands already. She knows her body parts such as: eyes, ears, mouth, nose, toes, feet, belly and hair. She says new words everyday. She says "no" to everything, I think we need to work on "yes" next! What a beautiful, smart girl we have.

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CHARGE Syndrome

"CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

One of the hidden features of CHARGE syndrome is the determination and strong character these children display."

Information taken from CHARGE Syndrome Foundation Website. For more information or to make a donation please visit: CHARGE Syndrome Foundation - Home