Disney World!

We had a fabulous time at Disney World.  We shared this trip with my parents and Jay's sister Peggy and her family.  The kids all had a wonderful time and so did the adults.  It really is a Magical place.  We loved the Illumination show on the side of the castle(which had pics of Makenna and Ayla at Bibbidi, Bobbidi, Boutique) and Wishes (the fireworks show at Magic Kingdom.)  It was so hot the entire time we were there.  I don't think I have ever been that hot in my life. The good thing was the lines really weren't too long.  We either had great timing or the numbers were down while we were visiting. 

First character - Minnie Mouse

The Whole Gang headed out on our first morning.

 Cami dancing at Playhouse Disney with Ezra

 Beauty and the Beast Live on Stage - front row seats - AMAZING!

 I love this picture of Cami - she is watching a parade.  It just says it all about Disney World.

Ezra and Ayla.  Ezra loves anything Toy Story.

 Cami was wiped out after our first morning at a park.

 Another favorite - Cami and Daddy watching a parade.

 Pocahontas with the girls.  She was beautiful!

 Photo opp at Animal Kingdom.

Jay was picked to participate in the Lion King Show.  He had to teach us the Wart Hog call.

Cami dropped her original ice cream cone.  A very nice cast member made sure she got a replacement. As you can see it made her day.

 Ezzy with his icecream!

We saw Goofy at Playhouse Disney.  Cami said, "I want to kiss him!"  We finally met him in person the next day.  She loved all the characters.  She wasn't a bit shy :0)

 We caught Pluto on the last day on our way out of the park.  Thank goodness - Cami was so excited.

Another beauty - Rupunzel.  She thought Flynn Rider would love my 31 satchel, however, he wouldn't be there until November.

Everyone loved the castle.

 Goofy - at Chef Mickey's.  Poor Ezra wasn't feeling well so he missed out on breakfast.

 Donald Duck

 Minnie Mouse

Cami giving Mickey a kiss.

 Bibbidi Bobbidi Boutique

 Makenna thought there would be a ball to attend.  She wanted to dance - so we danced!

Last day at Disney World.

Oh my Goodness - they are holding Tinkerbell!!

Norman Family - Peggy, Devin, Ezra and Ayla

The Normans and Susils in front of the castle.

 The prettiest Cinderella I have ever seen.

Photo shoot.

Pretty girl

Seeing herself for the first time.

 Lovely

Getting her hair put into the princess bun.

CHARGE Syndrome Conference

 A friend from "across the pond" teaching Cami to hula hoop.

 Belinda and Cami having a squeeze.

 Makenna the cat.

 Makenna dancing at the party.

We attended the CHARGE Syndrome Conference in Orlando, FL this past July.  It is hard to describe the experience.  Basically, over 800 people associated with CHARGE Syndrome converge in a conference center for a weekend every two years.  It is an amazing, overwhelming, emotional, draining and energizing time. Every time we attend a conference, I think to myself don't be disappointed if you don't get as much out of it this year.  Yet every year, I learn something new and love it just as much as the first time we attended.   It is a wonderful experience to get to interact with professionals that understand and love working with people with CHARGE.  My favorite part is meeting families, individuals and old friends to talk, compare and just understand each other. It is an experience like no other.  One professional put it nicely when he said that the love we have for our children is palpable it is in the air, however, it is not just the parents. It is the other family members, friends, grandparents, professionals, the sign language interpreters, everyone in attendance has this love for these children/adults with CHARGE Syndrome.  Every single person at that conference is so invested in individuals with CHARGE Syndrome.  It is like a huge family reunion.  These words are just not doing the conference justice.  I feel very blessed that we have been fortunate enough to attend every conference since Makenna was 4 years old.   

A Picture Walk of our the last Ten Months

driving the jeep at COSI

Could she be any cuter in headphones?

watch out for the t rex

Kenna with the shock ball

the whole gang - Jack, Carson Sarah, Cami and Makenna

COSI

Dinosaur feet

Makenna at Black Water Falls

Makenna, Daddy and Papaw checking out the view.

Papaw and his camping girls on the top of the mountain.

Daddy and girls in the valley

More exploring

Love to ride

Camping buddies

Family photo

Makenna and her buddy Marissa

I love my girls.

Ready for their recital.

Makenna is ready for lunch

Long day of ATVing

Addi and Cami exploring the rocks

Makenna and Grandpa on the 4 wheeler

Trampoline with Uncle Brian

Head first! Memorial day fun.

All dressed up to cheer sissy on at baseball.

Kenna has it down pat.

Cami practicing with the Vipers - look at that form.

Winter dance recital at Sunny View Nursing home

Easter Sunday

Kenna's working hard

Easter eggs

Time for Baseball

Santa at Nana and Baba's

The Susil cousins - Makenna, Camille, Addison, Lydia, Ayla and Ezra

Oops out of order - more Christmas morning

Makenna's 10th birthday!

Ready for Christmas Mass

My Cuties

Better day for Christmas card photos

Christmas at Nana and Baba Miller's house

Serious discussion about what she wanted for Christmas.

Waiting patiently for her turn on Santa's lap.

Maybe not a good night for Christmas card photos.

Makenna and Santa - she asked if Santa got her gift at Walmart?!

Cami loves to tap.

Christmas dance recital

Trying for a Christmas Card picture.

The beloved pack pack. She wore this nonstop and took it everywhere - great buy :0)

Some help from big sis - opening birthday presents

What a two year old does when she finds a marker!

Happy 2nd Birthday Camille Rose!

Jack- o - Lantern and Tinkerbell

Finished product!

Makenna and pumpkin

Jack, Matthew, Cami and Makenna ready for trick or treat!

Girls with their pumpkins

Carson's birthday: Sarah, Cami, Jack, Makenna and Carson

Makenna

So I have obviously gotten way behind on my blogging. By the time I was ready to catch up it was just too overwhelming. I have decided to do a picture walk of the last ten months and start fresh from there. Enjoy!